In Denn, PKU parents had an effective advocate
News Journal Letter To The Editor, October 19, 2008
Matt Denn is one candidate who actually puts his money where his mouth is. He truly feels for the people of Delaware and fights for us when needed? I am a mom of two children with phenylketonuria, a genetic disorder where the body cannot break down the protein, phenylalanine. When not detected, or treated by dietary restrictions, people with PKU suffer catastrophic, non-reversible brain damage.
The only treatment for PKU is a low-protein diet and a special medical formula. The food and formula are unbelievably expensive. A box of low protein pasta is anywhere from $8-$12. Bread is $10 a loaf, formula can run from $400-$1,200 a month.
Most insurance carriers did not feel it was their responsibility to cover these medically necessary items? Delaware families affected by PKU have been fighting to get a law passed for 11 plus years.
With Matt Denn’s help, we finally got a law passed that makes the insurance carriers pay 100 percent for food and formula. Matt Denn was also there to help make sure the insurance companies complied with the new state mandate. His unwavering support was key in finally getting this legislation passed.
He has earned the loyal devotion of all of the PKU families here in Delaware. So if the people of Delaware weren’t sure how Matt Denn would hold up as lieutenant governor, they can set their worries aside.
Christy Schulze, Dover